WOODEND PATIENT PRIVACY NOTICE
“How the NHS and care services use your information
[Woodend Health Centre] is one of many organisations working in the health and care system to improve care for patients and the public).
Whenever you use a health or care service, such as attending Accident & Emergency or using Community Care services, important information about you is collected in a patient record for that service. Collecting this information helps to ensure you get the best possible care and treatment.
The information collected about you when you use these services can also be used and provided to other organisations for purposes beyond your individual care, for instance to help with:
• improving the quality and standards of care provided
• Research into the development of new treatments
• preventing illness and diseases
· monitoring safety
• planning services
This may only take place when there is a clear legal basis to use this information. All these uses help to provide better health and care for you, your family and future generations. Confidential patient information about your health and care is only used like this where allowed by law.
Most of the time, anonymised data is used for research and planning so that you cannot be identified in which case your confidential patient information isn’t needed.
You have a choice about whether you want your confidential patient information to be used in this way. If you are happy with this use of information you do not need to do anything. If you do choose to opt out your confidential patient information will still be used to support your individual care.
To find out more or to register your choice to opt out, please visit www.nhs.uk/your-nhs-data-matters. On this web page you will:
· See what is meant by confidential patient information
· Find examples of when confidential patient information is used for individual care and examples of when it is used for purposes beyond individual care
· Find out more about the benefits of sharing data
· Understand more about who uses the data
· Find out how your data is protected
· Be able to access the system to view, set or change your opt-out setting
· Find the contact telephone number if you want to know any more or to set/change your opt-out by phone
· See the situations where the opt-out will not apply
You can also find out more about how patient information is used at:
https://www.hra.nhs.uk/information-about-patients/ (which covers health and care research); and
https://understandingpatientdata.org.uk/what-you-need-know (which covers how and why patient information is used, the safeguards and how decisions are made)
You can change your mind about your choice at any time.
Data being used or shared for purposes beyond individual care does not include your data being shared with insurance companies or used for marketing purposes and data would only be used in this way with your specific agreement.
Health and care organisations have until 2020 to put systems and processes in place so they can be compliant with the national data opt-out and apply your choice to any confidential patient information they use or share for purposes beyond your individual care. Our organisation ‘is currently’ compliant with the national data opt-out policy. “
NHS Digital - Type 1 and Type 2 Opt-outs
You can decide if health and care information that could identify you is used for research and planning.
You can choose whether your confidential patient information is used for research and planning. To find out more visit nhs.uk/your-nhs-data-matters.
You do not need to do anything if you are happy about how your confidential patient information is used. You can change your choice at any time.
See below for the two types of national data opt-outs including information and forms to opt-out:
Type 1 opt-out: medical records held at your GP practice
You can tell your GP practice if you do not want your confidential patient information held in your GP medical record to be used for purposes other than your individual care. This is commonly called a type 1 opt-out. This opt-out request can only be recorded by your GP surgery. You have the right to control how medical information about you is shared, disseminated or sold, for purposes other than your direct medical care so called secondary uses (or purposes).
Type 2 opt-out: information held by NHS Digital
Previously you could tell your GP surgery if you did not want us, NHS Digital, to share confidential patient information that we collect from the across the health and care service for purposes other than your individual care. This was called a type 2 opt-out.
From 25 May 2018 the type 2 opt-out has been replaced by the national data opt-out. Type 2 opt-outs that have been recorded previously have been automatically converted to national data opt-outs.
The difference between your type 2 opt-out and the national data opt-out
All health and care organisations in England are required to apply your national data opt-out in line with the policy by March 2020, including hospitals and GP practices. Your type 2 opt-out only applied to confidential patient information being shared by NHS Digital.
National data opt-outs are not recorded at the GP practice and instead you can change your national data opt-out using the online service or by calling our contact centre.
Young adults from the age of 13 can set and change their own national data opt-out.
What’s not changed
As for a type 2 opt-out, the purpose of the national data opt-out is to prevent the use of your confidential patient information for research and planning purposes.
Also, in the same way as a type 2 opt-out the national data opt-out does not apply where your confidential patient information is provided:
· in anonymised form that is compliant with the Information Commissioner’s Office Code of Practice on anonymisation
· to meet a mandatory legal requirement
· under the public interest test (such as to support the investigation of serious crime and/or to prevent abuse or serious harm to others)
· to the National Cancer Registration Service (this has its own opt-out)
· to the National Congenital Anomalies & Rare Diseases Register (this has its own opt-out)
Your national data opt-out will continue to be applied by NHS Digital and is applied within 21 days of when we first receive and process the opt-out information. If you had set a type 2 opt-out at your GP practice after 25 May 2018 then be aware we only collected that information from your GP practice once a month and it could take up to 21 days after we received that information for your opt-out to be put in place.